Thursday 6 January 2011

Arthrogryposis

One of the reasons for me having this blog is for me to be able to document some of my experiences TTC and hopefully pregnancy and Motherhood as a girl with AMC (Arthrogryposis Multiplex Congenita).  My reason for this is since we began TTC 13 months ago i have tried so hard to find information on TTC with Arthrogryposis such as could it be a cause of any difficulties conceiving? I still haven't found the answer to this other than I know that personally im struggling but if it is connected to AMC i don't know. But also i would like to find out how women with AMC cope in pregnancy and giving birth? I know that AMC is pretty rare I think it occurs in something like 1 in 3000 births so most people i have met have never heard of it but i thought that there would be more out there on the world wide web than there is! Yes you can find a ton of info on babies and children with AMC and information for parents who have children with it which is great but anything about TTC and Pregnancy I can't find anything! Perhaps im looking in the wrong places, I can't be the only one can I?! Surely not, so this is my way of putting my personal experiences out there for anyone else who might be looking.

So this is just a brief explanation of what AMC is:  
"Arthrogryposis" (Arthrogryposis Multiplex Congenita) is a term describing the presence of multiple joint contractures at birth. A contracture is a limitation in the range of motion of a joint.
In some cases, few joints maybe affected and the range of motion may be nearly normal. In the "classic" case of Arthrogryposis, hands, wrists, elbows, shoulders, hips, feet, and knees are affected. In the most severe cases, nearly every body joint may be involved, including the jaw and back. Frequently, the joint contractures are accompanied by muscle weakness which further limits movement. I have the "classic" form of AMC.

So I hope in some small way this blog will be able to help someone else in a similar situation or if there is anyone out there reading this that could help me out with some advice i would be really grateful!

1 comment:

  1. I am pregnant with arthrogryposis, and I am writing about my experience in my blog, jessicasvent.blogspot.com !

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